Camp Courage

Important Announcements:

  • Camp Courage is open to children, ages 3 to 17 years old attending the conference. This includes children with MPS and related diseases, as well as siblings or other family members.
  • If you have a child over the age of 17 years and would like to include him/her in Camp Courage, please email Debra after registration is complete.
  • Take a moment to review the registration guidelines, rules, and regulations for Camp Courage.
  • Please feel free to bring superhero-themed costumes or props!
  • Check out the biographies and pictures of the core team working with the children in Camp Courage!

Camp Courage Schedule:

Thursday, August 2 Activity Location 
 7:30 am – 2 pm Optional Event($50)
San Diego Zoo 7:30am – 2pm (Includes breakfast and lunch)
 San Diego Zoo
 2:45 pm Camp Courage Opens   
 3:00 pm – 4:00 pm
Superheroes  Executive Rooms
 4:30 pm – 6:00 pm Magic and Bubble Show  Executive Rooms
6:30 pm Clown and Activities Executive Rooms
7 pm Camp Courage Closes   
Friday, August 3 Activity  Location 
 7:45 am Camp Courage Opens   
8 am – 10 am Comic Ventriloquist Executive Rooms
10 am – 12 pm Rehearsal, Costume Design, Illustration Class
Executive Rooms
12 pm Camp Courage Closes   
LUNCH
12:45 pm Camp Courage Opens  
1:30 pm – 2:30 pm Animal Champions Animal Show Executive Rooms
2:30 pm – 4:00 pm Older Sibling Breakout Session TBD
2:30 pm – 5:00 pm Kathryn the Grape (music, stories, poster signing)
Executive Rooms
4:45 pm – 5:15 pm Clown and Activities Executive Rooms
5:15 pm Camp Courage Closes   
Saturday, August 4 Activity Location
7:45 am Camp Courage Opens  
8:00 am – 10:00 am Carnival and Outdoor Games Pavilion
10:30 am – 12 pm Kathryn the Grape
Executive Rooms
12 pm Camp Courage Closes   
LUNCH
12:45 pm Camp Courage Opens  
1:30 pm to 2:30 pm Radical Reptiles and Friends Show Executive Rooms
3:00 pm – 4:00 pm Younger Sibling Breakout Session TBD
3:00 pm to 5:00 pm Rehearsal and Costume Design Executive Rooms
5:15 pm Camp Courage Closes   
6:30 pm Symposium Banquet Dinner and Awards Pavilion

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

A note from our Camp Courage Director, Coach Jerry Bennett

Photo courtesy of National MPS Society

I became involved with the National MPS Society in 2010 when I was approached by Dr. Kimberly Frye, mother of an impish and personality filled student in my BModFitness program, if I would be interested in providing child care services for the National MPS Conference being held at Knott’s Berry Farm. I had already been convinced of the vital nature of these conferences by Kimberly, and I agreed that having parent-trusted, quality child care on-site, was a necessity for parents to get the most out of the various lectures and workshops and networking opportunities.  This is what got me there for Day One, but it was all the amazing children I met on that first day that has brought me back for every conference day since — the smiles, the personalities, the love and affection, the joy with life that I felt and saw in every child and the sincere appreciation and gratitude that I received from every parent.

Photo courtesy of National MPS Society

I have been blessed throughout my life to have had the privilege to work with the special needs community in general, and as a result I have access to a large number of quality professionals in the education, psychology and physiology fields, people who I have already begun tapping to be a part of my Camp Courage team at the 2018 International Conference!  These people will augment the college volunteers I plan to recruit to play with the kids, allowing me to have many trained professionals on the floor with our kids and volunteers, helping ensure the safest and most enjoyable  environment for our kids! I am honored to have become a part of the MPS family. I also now know what it means to live with MPS on a daily basis as Dr. Frye is now my wife, and her son, Jack, is now my stepson. This new experience has only redoubled my desires to give as much of myself as I am able to help all those affected with MPS and related disorders.

Coach Jerry Bennett
coachjerry@mac.com
805-341-9188