- Camp Courage is open to children, ages 3 to 17 years old attending the conference. This includes children with MPS and related diseases, as well as siblings or other family members.
- If you have a child over the age of 17 years and would like to include him/her in Camp Courage, please email Debra after registration is complete.
- Parent orientation will be held on Thursday, August 2from 2 to 3 p.m. to meet staff, answer questions and verify the accuracy of all registration information submitted by attendees.
- Rules and regulations for Camp Courage are coming soon.
- An agenda for Camp Courage will be available in April.
A note from our Camp Courage Director, Coach Jerry Bennett
I became involved with the National MPS Society in 2010 when I was approached by Dr. Kimberly Frye, mother of an impish and personality filled student in my BModFitness program, if I would be interested in providing child care services for the National MPS Conference being held at Knott’s Berry Farm. I had already been convinced of the vital nature of these conferences by Kimberly, and I agreed that having parent-trusted, quality child care on-site, was a necessity for parents to get the most out of the various lectures and workshops and networking opportunities. This is what got me there for Day One, but it was all the amazing children I met on that first day that has brought me back for every conference day since — the smiles, the personalities, the love and affection, the joy with life that I felt and saw in every child and the sincere appreciation and gratitude that I received from every parent.
I have been blessed throughout my life to have had the privilege to work with the special needs community in general, and as a result I have access to a large number of quality professionals in the education, psychology and physiology fields, people who I have already begun tapping to be a part of my Camp Courage team at the 2018 International Conference! These people will augment the college volunteers I plan to recruit to play with the kids, allowing me to have many trained professionals on the floor with our kids and volunteers, helping ensure the safest and most enjoyable environment for our kids! I am honored to have become a part of the MPS family. I also now know what it means to live with MPS on a daily basis as Dr. Frye is now my wife, and her son, Jack, is now my stepson. This new experience has only redoubled my desires to give as much of myself as I am able to help all those affected with MPS and related disorders.